对于神经发育障碍的青少年的医疗保健:一个共识声明
Carol Weitzman1, Cy Nadler2, Nathan J Blum3
1Boston Children's Hospital, Boston, Massachusetts.
Pediatrics
|April 10, 2024
概括
患有神经发育障碍 (NDD) 的人面临医疗保健障碍. 支持所有人获取 (SAFE) 倡议为患有NDD的年轻人制定了公平,可访问和有效的医疗保健原则.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 关于残疾人的研究.
- 儿科 儿科 儿科
背景情况:
- 患有神经发育障碍 (NDD) 的人面临着严重的医疗保健差异和障碍.
- 现有的医疗保健系统往往无法满足患有NDD的年轻人的独特需求,导致不良结果.
- 迫切需要基于证据的策略来改善这一群体的医疗保健公平.
研究的目的:
- 制定医疗保健服务的原则,以提高神经发育障碍 (NDD) 的年轻人的公平性.
- 建立基于共识的建议,为患有NDD的个人提供可访问,人道和有效的医疗保健.
- 创建一个框架,以提高年轻人与NDD的医疗保健经验.
主要方法:
- 召集一个多元化的共识小组,包括专业人士,护理人员和患有NDD的成年人.
- 举办一个公共论坛,介绍研究,临床策略和个人经验.
- 在共识会议期间使用名义组技术来推建议.
主要成果:
- 在五个领域建立了十个共识声明 (CSs):培训,沟通,获取和规划,多样性/公平/包容/归属/反能力以及政策/结构变化.
- 开发了一个NDD医疗保健权利法案和过渡考虑.
- 达成共识的声明肯定了所有人享有可访问,人道和有效的医疗保健的权利.
结论:
- 支持所有人获得 (SAFE) 倡议为改善NDD年轻人的医疗保健公平提供了一个框架.
- 由此产生的原则和建议可以指导医疗保健提供者,政策制定者和系统.
- 实施这些建议对于确保所有患有NDD的个人获得优质医疗保健至关重要.
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