青少年强迫症患者和护理人员对潜在深脑刺激治疗中的身份,真实性和正常性的看法
Jared N Smith1, Natalie Dorfman2, Meghan Hurley1
1Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.
概括
患有强迫症 (OCD) 的青少年患者认为深度大脑刺激 (DBS) 显著影响身份. 它们预测了积极的自我发现和潜在的真实性损失,突出了儿科DBS知情同意的关键考虑因素.
科学领域:
- 神经伦理学是一种神经伦理学.
- 神经科学是一个神经科学.
- 精神病学是一个精神病学.
背景情况:
- 神经伦理学关于神经调节的辩论,就像深度大脑刺激 (DBS) 一样,往往忽略了未来儿科患者对人格,身份和代理机构 (PIA) 变化的看法.
- 有限的研究存在于强迫症 (OCD) 青少年如何感知DBS的潜在PIA变化.
研究的目的:
- 探索青少年患者对DBS如何影响其身份,代理和真实性的观点.
- 了解患者和护理人员对DBS对儿科强迫症的潜在心理社会影响的看法.
主要方法:
- 与被诊断患有强迫症的青少年患者及其父母/照顾者进行并分析了半结构面试.
- 面试问题集中在DBS对患者个性,身份和代理机构 (PIA) 的预测影响上.
主要成果:
- 所有青少年患者和一半的护理人员预计DBS会对患者自我认同产生重大影响.
- 患者表达了双重观点:DBS可以使身份探索不受强迫症的影响,但也引起了对减少代理和真实性的担忧.
- 一半的患者预计由于症状缓解而改善了社会接入,而另一半则担心增加了社会耻辱.
结论:
- 青少年的观点对于儿童强迫症的DBS的知情同意和决策至关重要.
- 研究结果提供了关于青少年对残疾身份认同的体验和强迫症背景下的"正常"概念的见解.
- 了解这些观点对于在青少年群体中道德地实施DBS至关重要.
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