[世界被颠倒:脊柱裂变的孩子的父母如何经历过渡. 一个定性研究]
Alexandra Wattinger1,2, Brigitte Seliner1
1Spina Bifida Zentrum, Universitätskinderspital Zürich, Schweiz.
Pflege
|April 11, 2024
概括
脊柱裂 (SB) 的孩子的父母面临着向成年人医疗保健的艰难过渡,经历了矛盾的感觉,需要持续的支持. 了解他们的旅程对于有效的护理至关重要.
科学领域:
- 儿科医疗保健服务 儿科医疗保健服务
- 关怀的过渡 关怀的过渡
- 定性研究是一种定性研究.
背景情况:
- 从儿科到成人医疗保健的脊柱裂变 (SB) 儿童的过渡需要显著的父母角色调整.
- 卫生专业人员在通过这个复杂的过渡过程 (TP) 支持家庭方面发挥着至关重要的作用.
- 在SB过渡期间,父母的经验和支持需求仍然不完全被理解.
研究的目的:
- 探讨父母在脊柱裂变儿童过渡过程的不同阶段的经历.
- 为了确定父母在这个重要的生命变化期间不断变化的支持需求.
主要方法:
- 定性研究采用半结构化,指导面试与脊柱裂的孩子的父母.
- 使用接地理论原则 (开放和轴向编码) 分析了十次采访.
- 探索父母在医疗转移之前,期间和之后的经历.
主要成果:
- 过渡过程 (TP) 受健康,学校和家庭环境的影响.
- 父母体验TP作为一个连续的重定向,标志着矛盾的感觉.
- 相互矛盾的情绪来自于放弃责任,同时仍然感觉保护他们的孩子.
结论:
- 医疗保健专业人员必须承认SB过渡期间的深刻变化和父母的矛盾.
- 针对父母情感需求的定制支持是必不可少的.
- 来自高级专业人员的持续支持,协调和信息可以增强父母的安全感.
关键词:
父母 父母 父母 父母 父母这是一种体验的体验.经验 经验 经验 经验 经验父母 父母 父母 父母 父母 父母 父母这是一个质的定性.有关质量的质量.脊椎裂纹 (spina bifida) 是一个过渡 过渡 过渡 过渡更多相关视频
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