为轴性脊椎关节炎进行系统的全球评估提供标准化报告:基于证据和共识的倡议
Adeline Ruyssen-Witrand1, Damien Caillet-Portillo2, Aurélie Najm3
1Rheumatology Centre, Toulouse University Hospital, Centre d'Investigation Clinique de Toulouse (CIC1436), Inserm, Team PEPSS "Pharmacologie En Population cohorteS et biobanqueS", University of Toulouse 3, Toulouse, France.
Joint bone spine
|April 11, 2024
概括
这项研究提出了一个标准化的框架来评估轴性脊柱关节炎 (axSpA) 患者,涵盖疾病,并发病,生活方式和生活质量,以改善患者护理.
科学领域:
- 类风湿病学 类风湿病学
- 临床实践指南 临床实践指南
背景情况:
- 协会建议对轴性脊柱关节炎 (axSpA) 进行系统评估.
- 对于 axSpA 患者评估内容,目前还没有标准化的框架.
- 这一倡议解决了对数据收集框架的需求.
研究的目的:
- 为 axSpA.A. 提出一个标准化的报告框架.
- 利用基于证据和共识的方法.
- 确保在所有axSpA领域进行全面的数据收集.
主要方法:
- 文献审查和共识过程涉及一个指导委员会和专家小组.
- 确定关键领域和评估工具.
- 专家会议和投票会议以达成共识.
主要成果:
- 建立了一个四个领域的框架:疾病评估,并发症,生活方式和生活质量.
- 采用了特定的评估项目和工具.
- 提供了数字工具的建议.
结论:
- 为axSpA开发了一个基于共识的报告框架.
- 该框架支持日常实践中进行系统的全球评估.
- 这促进了 axSpA 管理的标准化数据收集.
相关概念视频
Genome-wide Association Studies-GWAS
12.6K
Genome-wide association studies or GWAS are used to identify whether common SNPs are associated with certain diseases. Suppose specific SNPs are more frequently observed in individuals with a particular disease than those without the disease. In that case, those SNPs are said to be associated with the disease. Chi-square analysis is performed to check the probability of the allele likely to be associated with the disease.
GWAS does not require the identification of the target gene involved in...
GWAS does not require the identification of the target gene involved in...
12.6K
Rheumatic Heart Disease II: Clinical Manifestations and Diagnostic Studies
1.3K
The key clinical manifestations of Rheumatic heart disease (RHD) include several distinct cardiac symptoms.Carditis, a hallmark of acute rheumatic fever, involves inflammation of the heart's endocardium, myocardium, and pericardium. Chronic RHD often results from recurrent episodes of carditis. Its symptoms include the following:Murmurs are caused by valvular damage, especially to the mitral and aortic valves. Mitral stenosis or regurgitation is common, with characteristic heart murmurs...
1.3K


