一项关于术后口腔癌患者的耻辱经历的定性研究
Jie Zhu1,2, Chu-Xia Tan2,3, Jia-Yi Guo1,2
1Clinical Nursing Teaching and Research Section, The Second Xiangya Hospital of Central South University, 139 Renmin Middle Road, Changsha, 410011, Hunan, China.
概括
手术后的口腔癌患者由于外观变化和功能障碍而经历了显著的耻辱. 了解这些耻辱经历对于开发有效的干预措施和支持系统至关重要.
科学领域:
- 在瘤学瘤学.
- 心理社会瘤学
- 定性研究是指质量研究.
背景情况:
- 口腔癌显著影响患者的外表和口腔功能.
- 耻辱感是癌症幸存者的公认心理社会挑战,可能会影响生活质量.
研究的目的:
- 探索术后口腔癌患者所经历的耻辱的特征.
- 为制定有针对性的干预措施提供基础,以减轻耻辱.
主要方法:
- 涉及25名术后口腔癌患者的定性研究.
- 进行了半结构面试,以收集关于耻辱经历的数据.
- 数据分析使用NVivo V.12软件和反射直观主题分析.
主要成果:
- 耻辱的触发因素包括外表受损,口腔功能受损以及心理社会压力.
- 耻辱的形式包括社会孤立,自卑感和歧视.
- 患者采用了应对策略,如心理调整和寻求社会支持.
结论:
- 手术后的口腔癌患者面临着多方面的耻辱.
- 需要提高教育和意识,以支持积极的应对机制.
- 进一步的研究应侧重于减少这一群体的耻辱感.
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