辐射揭示:从研究参与到参与
Lisa Whittaker1,2, Jamie A Dean3,4, Catarina Veiga3
1Wellcome/EPSRC Centre for Medical Engineering, King's College London, London, UK.
British journal of cancer
|April 13, 2024
概括
这项公众参与项目将接受放射治疗的年轻人与研究人员联系起来. 它促进了同行支持,并为患者和医疗专业人员创造了宝贵的资源,强调了患者在研究中的声音的重要性.
科学领域:
- 让公众和患者参与研究.
- 辐射瘤学 辐射瘤学
- 参与癌症研究 参与癌症研究
背景情况:
- 放射治疗是一种关键的癌症治疗方法,但患者的经验和观点在研究中往往不足.
- 患者和研究人员之间的有效沟通和合作对于改善治疗和支持至关重要.
研究的目的:
- 启动具有放射治疗经验的年轻人与放射研究人员之间的对话.
- 从患者的角度确定有关放射治疗的关键信息需求和知识差距.
- 培养一个协作环境,以改善放射治疗患者的参与.
主要方法:
- 进行了一项创意,协作和多个合作伙伴的公众参与项目,名为"辐射揭露".
- 三个为期2小时的在线研讨会汇集了10名有放射治疗经验的年轻成年人 (17-25岁) 和来自英国癌症研究机构RadNet伦敦市的研究人员.
- 该项目包括来自慈善机构和年轻人的持续反,视觉文档和研讨会后的参与策略.
主要成果:
- 该项目成功启动了讨论,并确定了患者希望他们了解放射治疗的关键信息.
- 额外的好处包括加强同行支持,参与者持续参与研究,建立友和支持小组.
- 该倡议导致了为医疗专业人员和社交媒体资源创建和全国传播"十大技巧".
结论:
- 专注的协调和与国家癌症慈善机构的密切联系对于成功的患者参与项目至关重要.
- 整合来自患者和慈善机构的持续反,以及持续的参与,大大放大了项目的影响.
- 该项目强调了将患者的声音纳入放射治疗研究和开发的所有方面的价值.
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