家庭特征和儿童保育模式与癌症丧亲父母的早期社会功能有关
Jennifer M Snaman1,2, Li Chen3, Emanuele Mazzola3
1Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.
Cancer
|April 15, 2024
概括
丧亲的父母觉得他们已经准备好了生命末期 (EOL) 护理,并且没有物质困难,保持了社会功能. 这些因素可以指导干预措施,以改善悲伤的父母的结果.
科学领域:
- 儿科瘤学 儿科瘤学
- 抚慰性护理是一种缓解性护理.
- 悲伤研究 悲伤研究
背景情况:
- 儿童癌症死亡导致父母终身悲伤.
- 丧亲父母的早期社会功能与更好的结果有关.
- 识别影响早期社会功能因素可以为干预提供信息.
研究的目的:
- 确定与儿童癌症丧生的父母维持社会功能相关的因素.
- 为悲伤的家庭提供支持性干预措施的发展提供指导.
主要方法:
- 调查了128名死于癌症的孩子的父母 (死后6-24个月).
- 使用经过验证的工具评估悲伤经历.
- 使用回归模型来检查人口统计学,治疗和终生因素与社会功能之间的关联.
主要成果:
- 没有家庭物质困难的家长增加了维持社会功能的几率 (OR,4.7).
- 父母为生命末期 (EOL) 情况做好了准备,这增加了维持社会功能的几率 (OR,5.5).
- 家庭响应率为38%.
结论:
- 对于EOL的准备和没有物质困难与丧亲父母的维持社会功能有关.
- 干预措施应侧重于EOL准备和减轻物质困难.
- 这些发现可以改善儿童癌症死亡后家庭的丧亲支持.
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