评估在线健康信息的利用及其对乳腺癌幸存者的心理社会影响:定性探索
Samar J Melhem1,2, Shereen Nabhani-Gebara2, Reem Kayyali2
1Department of Biopharmaceutics and Clinical Pharmacy, School of Pharmacy, The University of Jordan. Amman-Jordan.
Health promotion perspectives
|April 16, 2024
概括
乳腺癌幸存者经常在网上的健康信息中扎,这导致了痛苦. 提高资源质量和患者对评估信息的教育对于改善福祉和减少焦虑至关重要.
科学领域:
- 医疗信息学 医疗信息学
- 患者支持 患者支持
- 癌症研究 癌症研究
背景情况:
- 研究了乳腺癌患者在线信息搜索行为.
- 专注于对在线健康资源的不满以及其对福祉和焦虑的影响.
研究的目的:
- 了解乳腺癌幸存者的在线健康信息经验.
- 确定挑战,并为在线健康资源提出改进建议.
主要方法:
- 描述性现象学和便利抽样.
- 五个基于Skype的焦点小组与乳腺癌幸存者.
- 使用NVivo软件进行主题分析.
主要成果:
- 识别的子主题:信息质量,网络冠状病毒,健康素养,搜索策略,搜索的痛苦和搜索回避.
- 突出了在线获取健康信息的挑战,特别是阿拉伯语.
结论:
- 强调需要提高癌症患者在线健康资源的质量和可访问性.
- 强调文化相关材料和患者教育信息评估的重要性.
- 建议这些改进可以提高健康素养,减少焦虑,并支持幸存者.
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