患者对多发性硬化症的看法:一个比喻研究
Esra Uslu1, Aysel Özsaban2, Şahika Ocak3
1Department of Psychiatric Nursing, Faculty of Health Sciences, Eskisehir Osmangazi University, Eskisehir, Turkey.
Journal of evaluation in clinical practice
|April 16, 2024
概括
患有多发性硬化症的患者通常会负面地看待他们的病情,将其视为操纵者或追随者. 了解这些感知是医疗保健专业人员改善患者适应和护理策略的关键.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 定性研究是指质量研究.
背景情况:
- 多发性硬化症 (MS) 呈现出各种不同的症状和预后,使得个体患者的看法对于有效的护理至关重要.
- 隐喻分析提供了一个独特的镜头来探索慢性疾病的主观经验,如MS.
研究的目的:
- 通过使用比喻表达,揭示和分析患者对多发性硬化症 (MS) 的看法.
- 通过他们自己的描述语言来理解患有多发性硬化症的人的生活经历.
主要方法:
- 采用了一种包含隐喻分析的现象学方法.
- 在2022年7月至2023年1月期间,从184名多发性硬化症患者收集了数据,通过面对面的采访,使用提示"多发性硬化症就像...因为"...
- 用内容分析来分析收集的隐喻.
主要成果:
- 出现了五个主要主题:操纵性MS,时间性MS,追随性MS,不同的MS和恢复性MS.
- 十二个子主题提供了进一步的细节,包括模两可的,拖累性的,周期性的,永恒的,不被接受的,合作伙伴,伏击者,苦甜的和独特的MS.
- 这些发现表明,患者对MS的看法主要是负面的.
结论:
- 患有多发性硬化症的患者经常对自己的病情及其对生活的影响有负面看法.
- 医疗保健专业人员应该利用这些见解来加强患者适应策略并改善整体护理.
- 这项研究弥合了理论理解和在管理MS的实际应用之间的差距.
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