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长期癌症治疗期间儿童的认知和态度:一个民族学研究
Ryoko Michinobu1,2, Masaki Yamamoto2, Keita Igarashi2,3
1School of Nursing and Social Welfare Sciences, Fukui Prefectural University, Fukui, Japan michinor@fpu.ac.jp.
BMJ paediatrics open
|April 16, 2024
概括
接受癌症治疗的儿童发展出前性态度,并在认知,情感和关系方面成长. 这种理解是改善以儿童为中心的护理和儿童瘤学中共享决策的关键.
科学领域:
- 儿科瘤学 儿科瘤学
- 儿童心理学 儿童心理学
- 医疗保健研究 医疗保健研究
背景情况:
- 儿童癌症治疗是一个长期而具有挑战性的经历,对每个孩子来说都是独一无二的.
- 以儿童为中心的护理需要将患者的价值观和偏好与临床证据相结合.
- 了解治疗期间儿童的观点对于改善临床实践至关重要.
研究的目的:
- 探索儿童第一次接受癌症治疗住院治疗的经历和态度.
- 为了了解长期癌症治疗期间儿童的认知,情感和关系发展.
- 为了在儿科瘤学中改善以儿童为中心的护理.
主要方法:
- 对接受初始癌症治疗的七名儿童进行了长期参与式观察和采访.
- 系统地收集和主题分析儿童互动和行为的日常观察数据.
- 扩展分析以捕捉个体儿童随时间的叙事序列.
主要成果:
- 确定了685个叙事索引,分为21个子代码和五个主要主题.
- 关键主题包括:与医疗保健专业人员做出承诺,通过参与学习,自我照顾,扩大活动和过普通生活.
- 孩子们表现出对了解癌症和治疗的前性态度.
结论:
- 在医院接受癌症治疗的儿童对自己的病情和未来表现出积极的态度.
- 在整个治疗过程中,观察到显著的认知,情感和关系发展.
- 研究结果支持加强以儿童为中心的护理,强调在儿科瘤学中共享决策.
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