具有良好的ECOG绩效状态的晚期癌症患者的独特经验和护理需求:一种定性现象学研究
Ping Chen1,2, Mingfu Ding3, Changlin Li2
1Abdominal Oncology Ward, Division of Medical Oncology, Cancer Center, West China Hospital, Sichuan University, No. 37 Guoxue Alley, Wuhou District, Chengdu, 610041, Sichuan Province, China.
BMC palliative care
|April 16, 2024
概括
具有良好表现状态 (ECOG 0-1) 的晚期癌症患者有独特的需求,通常优先考虑癌症治疗,而不是缓解症状和保持独立. 他们的经历与绝症患者有很大不同,需要量身定制的护理策略.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 定性研究是一种定性研究.
背景情况:
- 具有良好东部合作瘤组 (ECOG) 绩效状态 (0-1) 的晚期癌症患者在定性研究中代表性不足.
- 现有的文献通常集中在表现较差的患者身上.
研究的目的:
- 探索具有良好的ECOG绩效状态的晚期癌症患者的生活经验.
- 为了确定这个患者群体的特定护理需求.
主要方法:
- 使用半结构面试的定性现象学方法.
- 使用Colaizzi的方法进行的数据分析.
- 针对16名终端固体癌症患者 (年龄在18-70岁之间,ECOG 0-1) 接受息治疗的有目的抽样.
主要成果:
- 七个关键主题出现了:轻微的症状,自我护理和决策的独立性,优先考虑癌症抑制,财务问题,希望,不愿讨论生命终点问题以及补充和替代医学 (CAM) 的使用.
- 具有良好的ECOG状态的患者表现出独立性,并优先考虑癌症生长抑制而不是症状管理.
- 财务问题显著影响了护理决策,许多人利用CAM,特别是草药.
结论:
- 具有良好的ECOG状态的晚期癌症患者与表现较差的同行相比,具有不同的经验和护理需求.
- 医疗保健提供者和政策制定者必须承认他们的独立性,专注于癌症抑制,解决财务问题,并改善CAM可访问性.
- 定制的护理策略和政策对于满足这种代表性不足的患者群体的独特需求至关重要.
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