患者在家庭息护理中与共享决策的经验 - 通过重大生活决策导航
Sandra Jahr Svendsen1,2, Ellen Karine Grov3, Katrine Staats4
1Lillestrøm Municipality, Lillestrøm, Norway. sanjs@oslomet.no.
BMC palliative care
|April 16, 2024
概括
在家庭息护理中的患者通过平衡自主和依赖医疗保健专业人员来导航决策. 灵活,以人为中心的方法对于支持性共享决策 (SDM) 至关重要.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 共享决策 - - 分享决策
- 患者体验 患者体验
背景情况:
- 共享决策 (SDM) 在息护理中至关重要,但患者对其启动和在家庭环境中的方法的看法尚未得到充分探索.
- 许多患者希望参与护理决策,强调需要对他们的经验和偏好进行研究.
研究的目的:
- 探索患者在挪威家庭息护理中对共享决策 (SDM) 的经验和偏好.
- 通过以患者为中心的见解,提高息护理的质量,并为医疗保健服务规划提供信息.
主要方法:
- 定性探索性设计,使用解释学方法.
- 对13名在家接受息治疗的患者进行了深入采访.
主要成果:
- 一个总体的主题是"导航到达自己的决定"出现.
- 关键的子主题包括感觉陷入没有代理的陷,向他人投降决策,以及在疾病之外保持自我身份.
结论:
- 灵活,以人为中心的方法对于SDM至关重要,适应患者不断变化的需求和健康素养.
- 了解患者在自主性和依赖医疗保健专业人员 (HCP) 之间的平衡是关键.
- 未来的研究应该专注于调整医疗保健系统和医疗保健人员的角色,以支持SDM中的动态患者需求.
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