发现印尼癌症儿童的息护理需求
Alexandra Widita Swipratami Pangarso1, Sri Mulatsih1, Mei Neni Sitaresmi1
1Department of Child Health, Dr. Sardjito General Hospital, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia.
Pediatric blood & cancer
|April 17, 2024
概括
父母希望为患有癌症的孩子提供更好的息护理,强调未得到满足的身体和心理需求. 改善沟通,让家庭参与生命终结决策,可以提高这些孩子的生活质量.
科学领域:
- 儿科瘤学 儿科瘤学
- 抚慰性护理是一种缓解性护理.
- 全球健康 全球健康
背景情况:
- 低收入和中等收入国家对患有癌症的儿童进行息护理是不发达的.
- 这项研究调查了临终癌症儿童的父母经验和需求.
研究的目的:
- 探讨父母对印尼癌症死亡儿童的经历和需求的看法.
- 识别儿科息护理提供方面的差距.
主要方法:
- 半结构面试与父母的孩子死于癌症在印度尼西亚学术医院 (2019-2020).
- 进行了家庭访问以收集数据.
主要成果:
- 虽然所有的孩子都死在医院,但许多父母 (37%) 希望在家里死去.
- 常见的症状包括呼吸困难 (82%),疼痛 (80%) 和食欲丧失 (80%).
- 抑郁症 (46%) 和焦虑症 (45%) 等心理症状得到了不充分的解决;与医疗团队的沟通往往不清楚 (43%).
- 孩子们感到孤独,并希望有更多的社交互动.
- 父母经常没有与医生讨论终身治疗偏好 (51%).
结论:
- 解决癌症儿童的整体需求 (身体,心理,社会,精神) 是至关重要的.
- 家庭积极参与终身护理决策对于改善生活质量至关重要.
- 加强沟通和以患者为中心的护理对于儿科息护理至关重要.
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