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在患有炎性肠病的年轻人中促进和阻碍性的因素:描述性的定性研究
Lili You1, Siyao Wang1, Yangyang Wang2
1Department of Gastroenterology, Peking Union Medical College Hospital, Beijing, China.
Nursing open
|April 17, 2024
概括
了解患有炎症性肠病 (IBD) 的年轻人的性能力是关键. 诸如自我管理和家庭支持等因素促进了弹性,而耻辱和社会压力则阻碍了年轻IBD患者的弹性.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 心理健康 心理社会健康
- 慢性疾病管理 慢性疾病管理
背景情况:
- 炎症性肠病 (IBD) 显著影响年轻人的心理社会福祉.
- 性是应对IBD等慢性疾病所带来的挑战的关键因素.
- 库姆弗的弹性框架为检查弱势青年的保护性和风险因素提供了一个有价值的镜头.
研究的目的:
- 确定和探索促进和阻碍IBD诊断的青少年和年轻成年人的性因素.
- 应用Kumpfer的弹性框架来了解IBD青年所面临的独特挑战.
- 为发展有针对性的干预措施提供信息,以支持这一群体的弹性.
主要方法:
- 一个描述性的定性研究,采用解释性的方法.
- 来自中国北京一家三级医院的10名患有IBD的年轻人的有目的采样.
- 通过半结构面试 (2020年12月 - 2021年3月) 和有针对性的内容分析收集数据.
主要成果:
- 出现了13个不同的主题,分为个人和环境因素.
- 促进因素包括接受疾病,自我管理,先前的治疗经验,生活目标,家庭支持,医疗护理和同行鼓励.
- 阻碍因素包括耻辱感,沟通缺陷,负面认知,社会误解,财务压力和学术/就业压力.
结论:
- 医疗保健专业人员需要对影响儿科IBD患者恢复力的个人和外部因素有更高的认识.
- 制定有针对性的护理策略对于培养内部优势和提供外部支持至关重要.
- 干预措施应侧重于增强年轻人管理炎症性肠病的性.
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