在怀孕期间诊断出先天性异常的决策:叙述性审查
Jillian Pecoriello1, Anna- Grace Lilly2, Dona Jalili1
1Department of Obstetrics and Gynecology, New York University Grossman School of Medicine, 550 1stAvenue, New York, NY, 10016, USA.
Journal of assisted reproduction and genetics
|April 17, 2024
概括
在第二个三个月胎儿异常诊断后,父母的决定是复杂的. 信息来源可以帮助或阻碍选择,突出需要更好的医疗保健提供者支持和培训.
科学领域:
- 产周医学 产周医学
- 医学伦理学医学伦理学
- 心理学 心理学 心理学
背景情况:
- 第二个三个月的胎儿异常诊断给准父母带来了复杂的伦理和情感挑战.
- 在这些情况下,父母的决策受各种因素的影响,包括个人信仰,支持系统和获取信息.
研究的目的:
- 审查现有的关于父母在第二个三个月胎儿异常诊断后的决策文献.
- 识别那些作为医疗决策的促进者或障碍者的信息来源.
主要方法:
- 进行了叙事文献审查,搜索同行评审的出版物和从2007年到2024年的系统性审查.
- 在对77个已识别的来源进行选后,包括了11个全文出版物.
- 分析了关键词,以确定与胎儿异常和决策相关的同时出现的术语.
主要成果:
- 临床医生的同情心和知识对于讨论胎儿异常至关重要.
- 父母利用多个信息来源,经常希望获得有关诊断,结果和管理选项的更详细信息.
- 决策受生活质量考虑,未来生育能力和共同经验的影响.
结论:
- 父母的决策是多因素的,受个人价值观,社会支持和医疗保健准入的影响.
- 了解信息来源作为促进者和障碍者的双重作用对于有效的患者支持至关重要.
- 在培训医疗保健专业人员方面存在重大差距,以充分支持面临这些困难决策的患者.
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