"我们没有被邀请":澳大利亚聚焦小组在试验中研究了如何改善种族多样性的结果
Bianca Brijnath1, Rachel Muoio2, Peter Feldman2
1Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Australia; Social Gerontology, National Ageing Research Institute, Melbourne, Australia; School of Social Sciences, University of Western Australia, Perth, Australia.
Journal of clinical epidemiology
|April 17, 2024
概括
临床试验中的种族多样性对于公平的健康结果至关重要. 如果招聘,材料和保留策略具有文化敏感性和社区驱动性,那么多样化的人口愿意参与.
科学领域:
- 临床研究 临床研究
- 健康差异 在健康上的差异
- 卫生社会学 卫生社会学
背景情况:
- 在临床试验中缺乏种族多样性有助于健康差异.
- 改善试验多样性对于公平的健康结果至关重要.
研究的目的:
- 在临床试验中研究种族多样性改善的种族多样性人口的经验和观点.
- 确定各种种族群体参与医学研究的障碍和促进因素.
主要方法:
- 这项定性研究涉及16个重点小组,其中包括来自澳大利亚21个种族多样化社区的158名成年人.
- 数据是在2022年8月至9月期间在6个首都和一个农村城镇的社区环境中收集的.
主要成果:
- 参与者表示愿意参加试验,但报告说很少有邀请.
- 增加多样性的关键建议包括社区伙伴关系,文化上可访问的翻译材料 (视听),尽量减少参与者的负担,建立信任和分享结果.
- 对敏感主题 (性健康) 或需要样本 (血液) 的研究存在不情愿,建议文化安全通信和数据安全保证.
结论:
- 多种不同的人群认识到试验的好处,并愿意参与.
- 社区对招聘,同意,数据收集和保留的洞察力对于试验设计至关重要.
- 需要更多的政府,监管机构,资助者和出版商的创新和灵活性,以提高试验中的种族多样性.
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