探索进展性神经疾病患者获得社区神经康复的机会:一项定性研究
Shona J Pryde1,2, Owen Williams3, Margaret P O'Hare3
1School of Health Sciences, Ulster University, Londonderry, UK.
Disability and rehabilitation
|April 18, 2024
概括
对于患有进展性神经疾病 (PNC) 的人来说,获得社区神经康复是复杂的. 了解病人 了解病人
科学领域:
- 神经学 神经学
- 康复医学 康复医学 康复医学
- 医疗服务研究 医疗服务研究
背景情况:
- 社区神经康复对于管理渐进性神经疾病 (PNC) 至关重要.
- 对这些服务的获取并不普遍,这对想要保持活跃生活的个人来说是一个挑战.
研究的目的:
- 探索影响社区神经康复的因素.
- 从北爱尔兰的PNC患者及其照顾者的角度了解这些因素.
主要方法:
- 虚拟聚焦小组由11名与PNC生活的人和3名护理人员组成.
- 使用框架方法对收集的数据进行了专题分析.
主要成果:
- 访问被概念化为一个分阶段的旅程,由拥有PNC的个人驱动.
- 关键主题包括以人为中心的护理的重要性,主动性,医疗保健专业人员 (HCP) 的影响力以及识别的障碍 ("道路工程和路障").
- 确定了有助于良好的访问的六个基本要素.
结论:
- 这项研究突出了PNC和HCP患者在获得神经康复治疗方面的复杂动态和需求.
- 需要进一步的研究来制定有效的策略,使个人能够获得必要的康复服务.
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