获得医疗保健的障碍和耻辱的经历:来自联合制作的长期Covid病例调查研究的发现
Donna Clutterbuck1, Mel Ramasawmy2, Marija Pantelic3,4
1School of Primary Care, Population Sciences and Medical Education, University of Southampton, Southampton, UK.
概括
长期的Covid (COVID-19的长期影响) 耻辱使许多人无法寻求护理,加剧了健康不平等. 这项研究突出了障碍和耻辱,建议提高对长期Covid患者的认识和支持.
科学领域:
- 公共卫生 公共卫生
- 医疗保健服务研究 医疗服务研究
- 社会科学与医学 社会科学与医学
背景情况:
- 长期Covid (COVID-19的长期影响) 经常受到污名化,特别是在社会弱势群体中.
- 耻辱和社会劣势造成了寻求医疗保健的重大障碍,可能加剧了健康不平等.
- 与社区咨询委员会 (CAB) 共同制作的一项研究开始调查这些障碍和耻辱.
研究的目的:
- 了解可能患有长期Covid的个人所面临的医疗保健和更广泛的障碍.
- 探索可能患有长期Covid的人群中耻辱的经历.
- 为制定改善护理和减少耻辱感的建议提供信息.
主要方法:
- 活跃病例发现被用来识别英格兰可能存在未被诊断的长期Covid的成年人.
- 进行了半结构面试,以探索护理障碍和经历的耻辱感.
- 对面试数据进行了专题分析;该研究与CAB合作制作.
主要成果:
- 参与者表示对长期Covid和可用的管理途径的认识有限.
- 自我怀疑,对判断的恐惧,以及对加重医疗系统负担的担忧,导致人们在寻求护理时犹不决.
- 耻辱和歧视的经历加剧了认识不公正,信誉受到身份的影响.
结论:
- 建议包括早期标志,为患者提供专用的倾听时间,整体护理和污名化缓解策略.
- 公共卫生信息传递对于提高认识,鼓励寻求帮助和解决耻辱的不良影响至关重要.
- 无论长期的Covid诊断如何,鼓励对新症状及时提供医疗帮助至关重要.
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