炎症性乳腺癌 (IBC) 倡导-过去,现在和未来!
Jeannine Donahue1, Joshlyn Earls2, Valerie Fraser3
1Department of Medicine, Division of Hematology-Oncology, Weill Cornell Medicine, New York, NY, United States; Inflammatory Breast Cancer International Consortium (IBC-IC), New York, NY, United States; Inflammatory Breast Cancer (IBC) Foundation, Milford, MI, United States.
International review of cell and molecular biology
|April 18, 2024
概括
患者倡导者对于治疗罕见,侵袭性疾病的炎症性乳腺癌 (IBC) 患者至关重要. 他们的基层努力改善了诊断,治疗和生存率,克服了医疗的耻辱和偏见.
科学领域:
- 在瘤学瘤学.
- 患者倡导 患者倡导
- 医疗保健的不平等 医疗保健的不平等
背景情况:
- 炎症性乳腺癌 (IBC) 是一种罕见的,具有快速进展的侵袭性疾病.
- 医学界的耻辱和偏见阻碍了IBC的教育和研究.
- 缺乏理解导致误诊和障碍护理IBC患者.
研究的目的:
- 检查25年来在炎症性乳腺癌 (IBC) 中患者倡导者的演变角色.
- 突出IBC患者倡导的挑战和成功.
- 定义IBC患者倡导所需的未来工作.
主要方法:
- 对患者倡导者的经验进行定性分析.
- 4名被诊断患有IBC的妇女的案例研究.
- 对IBC25年患者倡导工作的回顾.
主要成果:
- 患者倡导者在导航IBC患者的医疗保健系统中发挥着至关重要的作用.
- 基层教育举措对于改善IBC的理解和护理至关重要.
- 克服医疗耻辱和偏见对于推进IBC诊断,治疗和生存至关重要.
结论:
- 在过去的25年里,患者倡导对IBC护理产生了重大影响.
- 需要继续努力,以应对IBC诊断,治疗和生存的剩余挑战.
- 赋予患者倡导者的权力是确保所有IBC患者得到公平护理的关键.
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