在加拿大重新思考儿童神经发育障碍的基于诊断的服务模式:一个公平的问题
Angie Ip1,2,3, Brenda T Poon2,4, Tim F Oberlander1,2,3,5
1Division of Developmental Pediatrics, Department of Pediatrics, University of British Columbia, Vancouver, British Columbia, Canada.
Paediatrics & child health
|April 19, 2024
概括
许多神经发育障碍儿童因诊断不匹配而面临服务获取挑战. 基于职能和参与的方法可以改善对这些儿童的公平支持.
科学领域:
- 儿科 儿科 儿科
- 发育神经科学的发展神经科学.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 神经发育障碍包括各种先天性和获得性疾病,影响儿童的大脑和神经肌肉功能.
- 当前的服务提供往往依赖于诊断标签,这可能不准确地反映孩子的功能能力.
- 这可能会导致不平等和难以获得适当的支持,以满足复杂需求的儿童.
研究的目的:
- 检查神经发育诊断与儿童功能能力之间的不匹配.
- 分析基于诊断的服务模式如何加剧不平等.
- 倡导以功能和参与为基础的方法来改善服务提供.
主要方法:
- 文献综述和综合证据诊断与功能在神经发育障碍.
- 分析基于诊断标准的服务获取不平等情况.
- 基于功能和参与的服务模式的概念框架开发.
主要成果:
- 有证据表明,儿童的神经发育诊断与其实际功能水平之间经常存在差异.
- 以诊断为中心的服务模式为那些条件不符合标准诊断类别的儿童创造了障碍和不平等.
- 基于职能和参与的方法为服务提供提供提供了更公平,更有效的途径.
结论:
- 从基于诊断的转向基于功能和参与的方法对于公平的神经发育障碍服务至关重要.
- 实施基于功能的评估可以更好地识别儿童的需求,并促进获得量身定制的支持.
- 建议采取行动,以指导向更具包容性和公平的服务模式过渡.
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