牛皮患者的配偶的疾病负担和应对策略:一种定性研究
Min Wu1,2, Sining Zeng3, Yi Zhang1,2
1Department of Dermatology, Shanghai Skin Disease Hospital, Tongji University School of Medicine, Shanghai, 200443, People's Republic of China.
Journal of multidisciplinary healthcare
|April 22, 2024
概括
牛皮患者的配偶经历了严重的疾病负担,缺乏支持. 他们采用以问题为中心的策略,如知识获取和以情感为中心的策略,如接受或避免,以应对这种情况.
科学领域:
- 皮肤病学 皮肤病学
- 心理学 心理学 心理学
- 社会科学 社会科学 社会科学
背景情况:
- 牛皮是一种慢性自身免疫性皮肤疾病,会造成严重的心理和社会困扰.
- 关于配偶照顾牛皮患者的疾病负担和应对机制的研究有限.
- 这项研究解决了理解配偶面临的独特挑战的差距.
研究的目的:
- 探索患有牛皮的个体的配偶所经历的疾病负担.
- 识别和分析这些配偶使用的应对策略.
- 为受影响家庭提供有针对性的心理健康支持和干预措施的发展提供信息.
主要方法:
- 定性现象学研究方法. 定性现象学研究方法.
- 与十五名牛皮患者的配偶进行了深入的,半结构化的访谈.
- 对面试数据进行主题分析,以确定关键主题.
主要成果:
- 出现了三个核心主题:压倒性的疾病负担,缺乏支持系统和多样化的应对策略.
- 以问题为中心的应对包括获得疾病知识和面对问题.
- 以情感为中心的应对涉及接受,正常化,内化耻辱和回避.
结论:
- 牛皮患者的配偶面临着相当大的负担,并采用各种各样的应对机制.
- 医疗保健提供者必须及早识别和解决配偶负担.
- 建立支持网络和促进适应性应对对于配偶福祉至关重要.
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