在"中间"的"中间"
Jennie David1, Samantha R Paglinco2
1Pediatric Psychology and Neuropsychology, Department of Pediatrics, Nationwide Children's Hospital.
概括
两个医疗保健专业人员分享了他们与隐形疾病,炎症性肠病 (IBD) 的旅程,以及他们的患者经历如何塑造他们的儿科护理. 他们倡导对年轻IBD患者的整体护理.
科学领域:
- 心理学 心理学 心理学
- 胃肠病学 胃肠病学
- 儿科医疗保健 儿科医疗保健
背景情况:
- 作者在年轻时被诊断患有炎症性肠病 (IBD),经历了改变生活的隐形疾病.
- 他们与IBD的个人旅程为患者和未来的医疗保健专业人员创造了独特的视角.
- 这种双重性导致了专注于儿科IBD的职业生涯,旨在弥合患者和提供者经验之间的差距.
研究的目的:
- 探索患有慢性,隐形疾病的个体所占据的"中间"空间的概念.
- 突出IBD患者的个人经验如何影响他们在医疗保健中的专业方法.
- 倡导一个整体和同情的方法来照顾儿科IBD患者.
主要方法:
- 这项研究主要是个人经验的叙事反思和综合.
- 它借鉴了作者作为儿科IBD患者的生活经验.
- 它整合了他们作为儿科IBD心理学家和儿科胃肠病学家的专业角色.
主要成果:
- 作者作为患者和医疗保健专业人员都占据了一个独特的"中间"空间.
- 他们的个人经验与IBD提供了对年轻患者面临的挑战的深刻理解.
- 他们强调承认年轻患者超越诊断的全部人性的重要性.
结论:
- 作者主张将他们的患者和专业身份整合起来,以提供全面的护理.
- 他们强调需要将儿科IBD患者视为复杂的个体,而不仅仅是患者.
- 他们的工作旨在为年轻人提供支持的环境,帮助他们应对IBD的复杂性.
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