随着时间的推移,癌症护理负担的轨迹:感知与客观测量的负担的不同经验
Laura A Siminoff1, Maureen Wilson-Genderson1, Marcin Chwistek2
1College of Public Health, Social and Behavioral Sciences, Temple University, Philadelphia, PA, United States.
The oncologist
|April 23, 2024
概括
终身癌症护理的护理人员负担与患者的需求和时间有关. 与主观和客观负担有关,黑人护理人员报告的主观负担较小.
科学领域:
- 在瘤学瘤学.
- 老年学是一门学科.
- 社会学 社会学 社会学
背景情况:
- 基于家庭的终身癌症护理为护理人员带来了重大挑战.
- 了解护理人员负担的多面性质对于开发有效支持至关重要.
研究的目的:
- 综合评估终极癌症患者护理人员所承受的负担.
- 检查客观和主观护理人员负担与时间的关系.
主要方法:
- 一个为期12个月的223个癌症患者-护理人员对象的案例系列研究.
- 数据收集包括定量调查,日记和每隔一周进行结构化的观察.
主要成果:
- 主观护理人员负担与患者日常生活活动 (ADLs) 和日常生活工具活动 (IADLs) 相相关.
- 随着时间的推移,客观负担指标显示出显著的积极趋势.
- 主观和客观负担在护理人员内部和护理人员之间具有积极的关联.
结论:
- 癌症护理是一个动态的过程,需要适应疾病的进展.
- 社会文化因素,如种族,影响照顾者负担经历.
- 对于有针对性的支持性护理干预,需要对社会文化组成部分进行进一步的研究.
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