功能神经障碍患者的耻辱是如何展开的
Caoimhe McLoughlin1, Brodie McGhie-Fraser2, Alan Carson1
1Centre for Clinical Brain Sciences, University of Edinburgh, United Kingdom.
Journal of psychosomatic research
|April 24, 2024
概括
功能神经障碍 (FND) 中的耻辱感来自症状,医疗互动和自我感知,而不是线性路径. 患者验证和改善临床医生的培训可以帮助缓解FND的耻辱感.
科学领域:
- 神经学 神经学
- 精神病学是一个精神病学.
- 医学社会学 医学社会学
背景情况:
- 耻辱感在功能神经障碍 (FND) 中普遍存在,对患者的生活质量产生负面影响.
- 与FND相关的耻辱的复杂展开和缓解策略需要进一步探索.
研究的目的:
- 调查患者在整个功能神经障碍 (FND) 旅程中所经历的耻辱感,从症状发作到诊断及以后.
- 从患者的角度了解FND中耻辱的多方面的性质.
主要方法:
- 使用半结构面试对15名被诊断为FND的患者进行定性研究.
- 数据分析采用反射主题分析方法,由既有耻辱框架提供信息.
- 参与者是从门诊专门招募的,涵盖了各种FND表现.
主要成果:
- 六个主要主题和16个子主题详细介绍了FND的耻辱轨迹.
- 耻辱感是从症状体验,医疗保健"他人",社会互动和内部自我感知中产生的.
- 知识阶段影响了耻辱,而患者经验的验证则成为一个关键的缓解因素.
结论:
- FND的耻辱是一种非线性,多来源的现象.
- 干预措施应侧重于加强临床医生的培训和沟通,特别是在诊断时.
- 建议联合制作涉及FND患者的公共干预措施,以打击耻辱.
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