夏威夷农村的癌症护理协调:焦点小组研究研究
Shin Chang1,2, Michelle Liu2, Christa Braun-Inglis2
1John A Burns School of Medicine, University of Hawai'i at Mānoa, 651 Ilalo St, 96813, Honolulu, HI, USA.
BMC health services research
|April 24, 2024
概括
农村癌症患者面临着重要的护理协调挑战,包括进入和旅行障碍. 然而,电子门户和强大的支持系统可以改善他们的癌症护理经验.
科学领域:
- 在瘤学瘤学.
- 农村卫生 农村卫生
- 健康差异 在健康上的差异
背景情况:
- 农村人口的癌症发病率和死亡率不成比例地高.
- 护理和护理协调 (CC) 挑战的有限获取有助于这些差异.
- 对于夏威夷农村的癌症患者来说,进行治疗的岛际旅行带来了独特的CC障碍.
研究的目的:
- 探索影响夏威夷农村患者癌症护理协调 (CC) 的具体挑战和积极经验.
- 确定影响夏威夷农村癌症患者CC的因素.
- 为旨在改善农村人口癌症护理服务的干预措施提供信息.
主要方法:
- 对农村癌症患者进行了两次半结构化焦点小组采访 (n=8).
- 参与者从夏威夷农村 (夏威夷县和考伊岛) 招募,根据农村-城市通勤区代码 (RUCA ≥ 4) 定义.
- 开放式问题探讨了患者在护理协调方面的经验.
主要成果:
- 47%的讨论集中在CC的挑战上:获得护理 (27.3%),保险 (9.1%),岛际旅行 (6.1%) 和医疗素养 (4.5%).
- 参与CC的方便者 (30.3%) 包括电子患者门户 (12.1%),以团队为基础的方法 (9.1%),家庭护理人员支持 (4.5%),以及当地诊所工作人员 (4.5%).
- 缺乏瘤学家,分散的系统和有限的本地提供者加剧了接入问题.
结论:
- 农村的癌症患者面临着重要的CC挑战,特别是关于获得专业护理的机会.
- 积极的CC体验与电子患者门户,以团队为基础的护理和强大的支持网络有关.
- 调查结果突出了加强农村人口癌症护理协调的干预目标.
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