健康数据空间节点用于保护隐私的医疗数据链接,以支持协作二次分析
Martin Baumgartner1,2, Karl Kreiner1, Aaron Lauschensky1
1Center for Health and Bioresources, AIT Austrian Institute of Technology, Vienna, Austria.
Frontiers in medicine
|April 25, 2024
概括
使用健康数据空间节点的新联合基础设施使健康数据的安全二次使用成为可能. 该系统将各种数据源连接起来,以改善医疗分析和应用程序,克服数据孤岛.
科学领域:
- 医疗信息学 医疗信息学
- 数据科学数据科学数据科学
- 医疗保健系统工程 系统工程
背景情况:
- 由于孤立的数据孤岛,健康数据的二次使用未得到充分利用.
- 基础设施发展不足阻碍了将健康数据聚合到标准化知识库中.
研究的目的:
- 开发,实施和评估一个联邦基础设施,以实现健康数据的多功能二次使用.
- 建立健康数据空间节点,以聚合和分析孤立的健康信息.
主要方法:
- 开发了使用提取-转换-加载框架的独立健康数据空间节点.
- 实施了假名化,保护隐私的记录链接,以及对OMOP共同数据模型 (CDM) 的协调.
- 集成了一个多层次的功能存储,以支持协作分析和机器学习操作.
主要成果:
- 一个保护隐私的心力衰竭患者注册表被成功实施为概念验证.
- 该注册表将电子医疗记录,远程监控数据和国家死亡登记数据联系起来.
- 在基础设施内部署和测试了用于临床笔记分类的自然语言处理模型.
结论:
- 卫生数据空间节点基础设施是实用的现实世界实施在现场医疗保健注册表.
- 该系统促进了健康数据的多功能二次使用,灵感来自欧洲健康数据空间倡议.
- 该基础设施确保了数据主权,可扩展性和隐私,同时实现了先进的数据分析.
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