探索患者的观点,以电子患者报告的结果措施在家庭癌症息护理:一个定性研究
Letteria Consolo1,2, Ilaria Basile3, Stella Colombo4
1Department of Biomedicine and Prevention, University of Rome "Tor Vergata", Rome, Italy.
Digital health
|April 26, 2024
概括
电子患者报告结果 (ePROM) 可以改善家庭息治疗中的症状管理. 患者发现它们对于提高生活质量和放大他们的声音有价值,尽管最初的担忧.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 数字健康数字健康
背景情况:
- 电子患者报告结果 (ePROM) 是症状管理和患者参与息性癌症护理的宝贵工具.
- 采用ePROM的挑战包括患者的技术熟悉度和健康状况下降,特别是在家庭环境中.
- 了解患者的观点对于在社区息治疗中成功实施ePROM至关重要.
研究的目的:
- 探索患者对使用ePROMs在家庭瘤息护理中的症状报告的观点.
- 确定影响ePROM在该患者群体中采用和有效性的因素.
主要方法:
- 采用了一种定性解释方法.
- 与接受家庭息治疗的患者进行了半结构化的采访.
- 数据使用反射主题分析来分析.
主要成果:
- 出现了四个主要主题:ePROMs的战略价值和赞赏,增强的患者中心性,对ePROM使用的担忧,以及影响疗效的因素.
- 患者认为ePROM对于症状监测和改善生活质量有价值.
- 最初的隐被ePROMs在放大患者声音方面的感知好处所克服.
结论:
- 家庭息护理患者认为ePROM对症状监测和提高生活质量有益.
- 医疗保健专业人员和患者之间的持续对话对于解决怀疑和保持护理的人类因素至关重要.
- ePROM可以赋予患者权力,使他们在护理中拥有更大的发言权,即使在健康挑战中.
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