自闭症女性对母亲的经验:Reddit的定性分析
Sandra Thom-Jones1, Imogen Melgaard2, Chloe S Gordon3
1Australian Catholic University Limited, Melbourne, VIC, 3777, Australia. autisticprofessor@gmail.com.
Journal of autism and developmental disorders
|April 26, 2024
概括
自闭症母亲在产周期之外面临着独特的挑战,突出了需要量身定制的支持. 这项研究强调了社区和理解对于自闭症父母导航母性的重要性.
科学领域:
- 神经发育障碍 神经发育障碍
- 孕产妇健康 孕产妇健康
- 社会科学 社会科学 社会科学
背景情况:
- 自闭症母亲在研究中代表性不足.
- 现有的研究主要集中在围产期.
- 自闭症母亲面临着身体,心理,社会,感官和沟通方面的挑战.
研究的目的:
- 探索自闭症母亲在产周期之外的经历.
- 检查在线自闭症家长社区中对母亲的反思.
- 确定关键主题和支持自闭症母亲的需求.
主要方法:
- 对自闭症家长的Reddit社区讨论的定性分析.
- 用户生成内容的主题分析.
- 在线分享生活经验的探索.
主要成果:
- 确定的主题:"自闭症母亲是不同的"",自闭症母亲需要自闭症母亲"",自闭症母亲经历耻辱"和"从锁定中学习".
- 调查结果显示,持续存在的挑战和支持需求超越了产周阶段.
- 突出了自闭症社区中同行支持的重要性.
结论:
- 自闭症在整个育儿过程中对母亲的经历产生了重大影响.
- 需要专门为自闭症母亲设计的支持服务.
- 同龄人支持网络对于自闭症母亲的福祉和赋权至关重要.
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