妇女对基因组测试和精准医学在乳腺癌治疗中的知识 - 决策
Evelyn Robles-Rodriguez1, Linda Houser2, Belkys Sanchez3
1Oncology Outreach Programs, Cooper University Hospital, Camden, NJ.
Oncology nursing forum
|April 26, 2024
概括
在患有乳腺癌的黑人和西班牙裔妇女中,对个性化医疗的基因组测试的认识很低. 改善提供者沟通对于明智的治疗决策和公平的护理至关重要.
科学领域:
- 在瘤学瘤学.
- 遗传学 遗传学 是一个
- 健康差异 在健康上的差异
背景情况:
- 乳腺癌患者对遗传和基因组测试的理解影响了治疗决策.
- 在少数群体中,对高级癌症诊断的认识和获取的差异仍然存在.
研究的目的:
- 评估被诊断患有乳腺癌的妇女对遗传和基因组测试的认识.
- 探索患者和提供者在治疗决策中的角色.
主要方法:
- 聚焦小组对29名被诊断患有乳腺癌的非洲裔美国/黑人和拉丁裔/西班牙裔女性进行了调查.
- 专题分析被用来分析半结构面试成绩单.
主要成果:
- 参与者了解BRCA1/BRCA2变异的基因测试,但缺乏对基因组测试和个性化医学的认识.
- 决策角色各不相同,医生作为主要决策者或合作者.
结论:
- 提高患者对基因组信息的理解对于有关精确癌症治疗的明智决策至关重要.
- 提供者必须改善沟通,以确保患者感到参与他们的护理.
- 优先考虑患者参与和理解是解决治疗准入和吸收差距的关键.
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