患者和护理人员的经验在阿根廷应对亚托皮炎的负担
Korey Capozza1, Michelle Tu1, Alan Schwartz2
1Global Parents for Eczema Research (GPER), Santa Barbara, CA 93101, USA.
Medicina (Kaunas, Lithuania)
|April 27, 2024
概括
在阿根廷,患者和护理人员与阿托皮性皮肤炎 (AD) 的经验揭示了重大负担. 优先考虑教育和共享决策可以改善对这种慢性皮肤病的护理.
科学领域:
- 皮肤病学 皮肤病学
- 患者体验研究 研究研究
- 公共卫生 公共卫生
背景情况:
- 在阿根廷,对阿托皮性皮肤炎 (AD) 患者和护理人员经验的理解有限.
- 需要评估阿根廷人口中与阿尔茨海默病相关的多方面的负担.
研究的目的:
- 调查阿根廷成年阿尔茨海默病患者和儿科阿尔茨海默病患者的护理人员的经验,负担和医疗互动.
- 确定影响治疗满意度和疾病控制的关键因素.
主要方法:
- 在阿根廷,对334名成人阿尔茨海默病患者和339名护理人员进行了53项匿名调查.
- 收集有关人口统计,医疗保健提供者,财务负担,疾病严重程度/负担,教育和共享决策的数据.
- 使用线性和逻辑回归模型进行统计分析.
主要成果:
- 研究群体中女性的高患病率 (90.8%的调查受访者,72.8%的总体患者).
- 焦虑/抑郁和疼痛/不适显著影响生活质量.
- 中度至严重的AD病例报告了相当大的财务负担;很少有人接受了疾病特定的教育或考虑了优先事项.
- 疾病教育和共享决策与成人患者更高的治疗满意度和AD控制相关.
结论:
- 心理健康,疼痛和财务问题是阿根廷阿尔茨海默病患者和护理人员的主要负担.
- 强调疾病特异性教育和医生与患者的共同决策对于改善阿根廷的AD护理至关重要.
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