儿科自闭症研究队列 (PARC) 研究:针对患者的前性研究的协议,检查自闭症儿童的功能轨迹
Anna Kata1,2, Patrick G McPhee1,2,3, Yun-Ju Chen1,2
1Department of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.
BMJ open
|April 29, 2024
概括
这项研究追踪了自闭症儿童随着时间的推移如何发展,确定了影响其日常功能和支持更好的临床护理的因素.
科学领域:
- 发展心理学是发展心理学.
- 儿科卫生服务研究研究
- 自闭症谱系障碍研究研究
背景情况:
- 自闭症的发育变异性使得及时,个性化的护理变得复杂.
- 利益相关者的投入强调研究日常功能和健康的社会决定因素.
- 纵向研究对于理解自闭症进展至关重要.
研究的目的:
- 检查新诊断患有自闭症的幼儿的适应性功能轨迹.
- 确定与这些发展轨迹相关的因素.
- 为自闭症儿童提供临床护理和服务提供提供信息.
主要方法:
- 儿科自闭症研究队列 (PARC) 研究是一项以患者为导向的多站点纵向调查.
- 在加拿大和以色列招募了1300名最近被诊断为自闭症的7岁以下儿童.
- 通过在线门户网站进行6个月的评估,对8岁的未来后续情况进行评估.
主要成果:
- 纵向数据将绘制自适应性功能轨迹,从诊断到学校过渡.
- 分析将确定与发展异质性相关的儿童,家庭和服务因素.
- 专注于敏感发育时期的潜在转折点.
结论:
- 帕克研究将确定影响自闭症发展轨迹的关键因素.
- 与利益相关者集成的知识翻译确保了与临床实践的相关性.
- 调查结果将为省级和国家自闭症支持计划制定政策.
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