状细胞病患者的粮食不安全和生活质量
Wendy S Darlington1,2, Sharjeel Syed3, Kristen Wroblewski4
1Department of Pediatrics, Section of Hematology/Oncology and Stem Cell Transplantation, University of Chicago, Chicago, USA.
粮食不安全 (FI) 与患有状细胞病 (SCD) 的儿童和年轻人的生活质量 (QOL) 降低有关. 除了营养计划之外,解决FI可能会改善SCD患者的质量生活.
科学领域:
- 血液学 血液学 血液学
- 公共卫生 公共卫生
- 营养科学 营养科学
背景情况:
- 在状细胞病 (SCD) 患者中,对生活质量 (QOL) 和粮食不安全 (FI) 之间的联系的理解有限.
- 状细胞疾病 (SCD) 显著影响患者的整体福祉和日常生活.
研究的目的:
- 为了调查粮食不安全 (FI) 和生活质量 (QOL) 在患有状细胞病 (SCD) 的儿科和年轻成人患者之间的关联.
- 为了确定更高的FI水平是否与该人群的QOL降低相关.
主要方法:
- 这是一项涉及99名患有状细胞疾病 (SCD) 的患者的横截面研究.
- 使用经过验证的工具对食品不安全性 (FI) 进行选.
- 评估整体QOL和特定领域,包括关注和沟通.
主要成果:
- 22%的SCD患者对食品不安全性 (FI) 的查结果呈阳性.
- 在FI分数和整体QOL之间发现了显著的负相关性 (r = -0.22,p = 0.03).
- 在关注和沟通领域,FI与较低的质量生活相关.
结论:
- 粮食不安全性 (FI) 在状细胞病 (SCD) 患者中普遍存在,并与生活质量 (QOL) 的降低有关.
- 针对粮食不安全 (FI) 的干预措施超出了SNAP等现有的营养援助计划,对于改善SCD患者的质量生活至关重要.
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