状细胞贫血儿童的初级和专科护理模式
Pooja N Patel1, Kevin J Dombkowski1, Brian Madden1
1Susan B Meister Child Health Evaluation and Research Center, Department of Pediatrics, University of Michigan, Ann Arbor, Michigan, USA.
许多患有状细胞贫血 (SCA) 的儿童经常接受初级保健,但在基本的血液学护理中存在差距. 需要制定战略,改善儿科SCA患者获得专业服务的机会.
科学领域:
- 儿科血液学 儿科血液学
- 公共卫生 公共卫生
- 获得医疗保健 获得医疗保健 获得医疗保健
背景情况:
- 国家指导方针提倡为患有状细胞贫血 (SCA) 的儿童定期访问初级保健提供者 (PCP) 和血液学家.
- 综合,多学科的护理对于管理儿科SCA至关重要.
- 了解当前的护理模式对于改善健康结果至关重要.
研究的目的:
- 描述密歇根州SCA儿童中初级和血液学护理的利用情况.
- 为了识别PCP和血液病学家的门诊访问的模式.
- 评估遵守推的护理标准.
主要方法:
- 分析密歇根医疗补助行政索赔数据从2010-2018年.
- 鉴定1-17岁儿童患有SCA的情况.
- 计算每人/年访问率和每年PCP和/或血液学家访问的儿童比例.
主要成果:
- 包括875名患有SCA的儿童,贡献了2889个人年数据.
- 每年,87%-93%的人看过PCP,而63%-85%的人看过血液学家.
- 只有66%的人年包括每年访问PCP和血液学家,这表明有护理缺口.
结论:
- 对于患有SCA的儿童每年持续接受血液学护理的情况存在显著差异.
- 利用每年PCP访问的高率可能是提高SCA特定服务提供的一种策略.
- 改善综合护理对于优化儿科SCA患者的健康至关重要.
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