关于家庭参与的反思,根据脑麻的年轻人自我报告
Jacinta R Quartermaine1,2,3,4, Tanya A Rose1, Megan L Auld1,2,3,4
1The University of Queensland, Brisbane, Australia.
Developmental neurorehabilitation
|May 2, 2024
概括
患有脑 (CP) 的年轻人发现他们的家具有参与的包容性. 诸如CP特征,情绪和支持系统等因素影响他们参与家庭活动.
科学领域:
- 康复科学 康复科学 康复科学
- 职业疗法 职业疗法 职业疗法
- 关于残疾人的研究.
背景情况:
- 脑 (CP) 的年轻人在日常生活中面临着独特的挑战.
- 了解他们的家庭参与对于开发有针对性的支持至关重要.
- 以前的研究还没有完全捕捉到青少年和年轻成年人在家中患有CP的细微经验.
研究的目的:
- 探索脑患者年轻人家庭参与的实践经验.
- 识别影响他们参与日常家庭活动的促进者和障碍.
主要方法:
- 定性研究涉及15名患有CP的年轻人 (15-26岁).
- 通过书面反思,照片或家庭参与的视频收集数据.
- 分析使用反射主题分析来识别关键主题.
主要成果:
- 五个主要主题出现了:CP特征,思想,情绪,设备,环境,支持和包容.
- 参与者在很大程度上认为他们的家庭环境是一个包容的参与空间.
- 具体因素,如个人感受,可用的设备和社会支持,显著影响了参与度.
结论:
- 家庭环境通常被视为包容性CP的年轻人.
- 个人,环境和社会因素是参与的关键决定因素.
- 干预措施应考虑这些多方面的因素,以加强CP患者的家庭参与.
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