改善关于帕金森氏症痴呆症的对话
Ivelina Dobreva1, Joanne Thomas2, Anne Marr3
1Dementia Research Centre, Queen Square Institute of Neurology, University College London, Russell Square House, London, United Kingdom.
Movement disorders clinical practice
|May 2, 2024
概括
关于帕金森病 (PD) 痴呆症的公开对话至关重要. 共同制作的资源旨在改善患者,护理人员和临床医生之间的沟通,解决耻辱和鼓励PD痴呆症的积极护理.
科学领域:
- 神经学 神经学
- 老年病的医生 老年病的医生
- 精神病学是一个精神病学.
背景情况:
- 帕金森病 (PD) 显著增加痴呆风险.
- 耻辱和误解阻碍了对PD痴呆症的公开讨论.
- 改善沟通可以带来更好的支持,治疗机会和参与研究.
研究的目的:
- 共同制作可访问的信息资源.
- 为了加强关于帕金森病痴呆症 (PD痴呆症) 的对话.
- 让患者,护理人员和医疗保健专业人员参与资源开发.
主要方法:
- 参与PD患者,护理人员和专家的创意研讨会.
- 信息资源的合作开发.
- 结合了34名参与者和25名PD专家的见解.
主要成果:
- 大多数患有PD的人 (70%) 和照顾者 (81%) 都担心认知变化.
- 很少有人与医疗保健专业人员讨论了这些问题 (38%的PD,30%的护理人员).
- 对临床医生进行常规认知评估的高度同意 (91%的PD,73%的护理人员).
- 为患者,家庭和医疗保健专业人员共同开发的开放访问资源.
结论:
- 创意研讨会促进了有价值资源的联合制作.
- 多样化的声音和共同学习提高了资源的相关性.
- 为PD痴呆症开发了增强的沟通策略.
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