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一项系统性审查,以探索患者的MS知识和MS风险知识
1Department of Psychology, Royal Holloway University of London, Egham, UK. edward.smith4@nhs.net.
概括
患有多发性硬化症 (MS) 的患者往往对自己的病情及其风险知识不足. 更高的MS知识与更好的药物服药遵守和愿意有关,教育是关键因素.
科学领域:
- 神经学 神经学
- 健康心理学 心理健康心理学
- 患者教育 患者教育
背景情况:
- 像多发性硬化症 (MS) 这样的慢性疾病需要积极的患者自我管理和明智的决策.
- 在多发性硬化护理中,共享决策需要患者充分了解病情和相关风险.
- 保持最新的疾病信息对于优化自我管理和医疗保健互动至关重要.
研究的目的:
- 系统地审查现有的多发性硬化症 (MS) 患者知识和MS风险知识.
- 调查MS知识,MS风险知识和人口/疾病变量之间的关系.
- 确定对临床实践和未来研究的影响.
主要方法:
- 在PsycINFO,PubMed和Cochrane图书馆的系统文献搜索.
- 包括18项经过同行评审的定量研究,涉及4420名成年多发性硬化症患者.
- 由于测量工具和研究设计的异质性,叙事合成.
主要成果:
- 在所有研究中,MS知识和MS风险知识水平都低于最佳水平.
- 更高的MS知识与自我报告的更好的坚持和药物治疗意愿相关.
- 教育水平在很大程度上预测了MS知识和MS风险知识.
结论:
- 患有多发性硬化症 (MS) 的患者通常对他们的病情及其风险知识不足.
- 教育成就是影响MS知识的关键因素,影响自我管理和治疗坚持.
- 需要进一步的研究和有针对性的教育干预措施来增强多发性硬化患者的知识,并支持知情决策.
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