快速同步并解决问题 - - 对于负责任的数字健康的最佳实践
Constantin Landers1, Alessandro Blasimme1, Effy Vayena2
1Health Ethics and Policy Lab, ETH Zurich, Switzerland.
NPJ digital medicine
|May 4, 2024
概括
负责任的数字健康创新需要新的治理和最佳实践. 拥抱包容性共创和响应性监管可以确保在不妨碍创新的情况下获得道德成果.
科学领域:
- 数字健康数字健康
- 生物伦理学生物伦理学
- 卫生政策 卫生政策
背景情况:
- 数字健康创新有望改变医疗保健,但也引发了诸如隐私风险和偏见等伦理问题,可能会加剧健康不平等.
- 当前的监管原则和道德框架落后于数字健康进步的快速步伐.
- 迫切需要更新治理和创新实践,使伦理原则与商业,创新和监管现实保持一致.
研究的目的:
- 为负责任的数字健康创新提供最佳实践的实用见解.
- 确定有效的治理和创新策略,以应对数字健康中的伦理挑战.
主要方法:
- 一项采用交互式参与方法的定性研究.
- 与46个关键利益相关者在数字健康翻译的最前沿的参与.
主要成果:
- 确定了三个最佳实践核心集群:包容性共同创造,响应性监管和以价值为导向的创新.
- 证明负责任的数字健康需要利益相关者承诺适应创新和监管.
- 突出共同创作作为数字健康发展的基本方法.
结论:
- 通过利益相关者的承诺来调整创新和监管实践对于负责任的数字健康至关重要.
- 采用包容性的共同创造作为标准的运作方式可以确保道德发展.
- 协作实践可以平衡创新速度与防止不道德结果.
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