希望的来源和感知:一项涉及年轻痴呆症患者的定性研究
Jane Pritchard1, Ruth Bartlett2
1Department of Operations Team, The Good Care Group, UK.
Dementia (London, England)
|May 7, 2024
概括
希望对于年轻的痴呆症患者来说至关重要,他们在环境,联系,行动和内在力量中找到希望. 尽管面临挑战,他们积极挑战消极的刻板印象,表明痴呆症不会消除希望.
科学领域:
- 老年学是指老年学的学科.
- 心理学 心理学 心理学
- 痴呆症研究 痴呆症研究
背景情况:
- 希望是痴呆症护理中研究不足的一个现象.
- 痴呆症通常被认为是一种没有希望的诊断.
- 了解希望对于支持痴呆症年轻人至关重要.
研究的目的:
- 从年轻的痴呆症患者的角度探索希望的现象.
- 为了产生新的洞察力,了解这个人口如何体验希望.
- 为社区医疗保健专业人员提供支持福利的信息.
主要方法:
- 在英格兰的中部地区采用了修改后的日记采访方法.
- 六名患有痴呆症的参与者使用相机记录希望的来源.
- 半结构面试和以语音为中心的关系方法用于数据分析.
主要成果:
- 对年轻的痴呆症患者来说,希望是重要的.
- 希望的主要来源包括环境,社会联系,个人行为和内部资源.
- 参与者积极"挑战痴呆症",抵制消极的刻板印象,并保持希望,尽管生活在这种情况.
结论:
- 患有痴呆症的生活并不否定希望,尽管它可能会受到不充分的支持的影响.
- 医疗保健专业人员应该将关于希望的对话纳入他们与痴呆症患者的实践中.
- 解决脱节和丧的感觉对于培养希望至关重要.
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