鉴定受帕金森病影响的历史边缘化社区获得护理的障碍和促进者:一项定性研究
Danielle Kipnis1, Michele Lin1, Alissa Pacheco1
1Department of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA.
Journal of racial and ethnic health disparities
|May 8, 2024
概括
黑人民和西班牙裔/拉丁裔人士面临着早期帕金森病 (PD) 诊断的障碍. 解决种族主义,文化因素和医疗保健准入问题对于改善这些社区的护理和意识至关重要.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 健康差异 在健康上的差异
背景情况:
- 帕金森病 (PD) 不成比例地影响边缘化社区,包括黑人民 (MBD) 成员和西班牙裔/拉丁裔个人.
- 这些人群经历了延迟诊断和更大的疾病严重程度,由于在研究中的代表性不足和各种护理障碍.
- 了解社区识别的障碍对于公平获得PD医疗保健至关重要.
研究的目的:
- 在MBD和西班牙裔/拉丁裔个体中确定对帕金森病寻求医疗保健行为的障碍和促进因素.
- 确定可修改的障碍,以改善对这些人群的神经护理的参与.
- 探索社区对PD诊断和获得医疗保健的看法.
主要方法:
- 进行了两个重点小组,共有15名参与者 (主要是女性;MBD和西班牙裔/拉丁裔个人).
- 采用基于社区的参与式研究方法.
- 分析了讨论,以确定影响PD医疗寻求行为的关键领域.
主要成果:
- 在三个主要领域确定了寻求医疗保健行为的障碍:种族主义遗产,祖先的文化环境和医疗保健系统的访问.
- 这些因素影响了参与者对帕金森病的了解和熟悉.
- 参与者表达了强烈的愿望,希望增加社区教育和PD的认识计划.
结论:
- 在MBD,西班牙裔和拉丁裔社区的医疗保健差异和PD诊断延迟与系统性问题有关.
- 解决已识别的障碍需要进行以社区为中心的协作计划.
- 基于社区的参与性研究对于理解和减轻神经退行性疾病中的健康不平等至关重要.
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