被遗忘的客户群:以患者为中心的病理学报告的系统审查
Eric Steimetz1,2, Elmira Mostafidi1, Carolina Castagna2
1Department of Pathology, SUNY Downstate Health Sciences University, Brooklyn, New York, United States of America.
PloS one
|May 9, 2024
概括
以简单语言撰写的以患者为中心的病理学报告 (PCPR) 可以提高患者对癌症阶段和等级的理解. 未来的干预措施应侧重于为这些可访问的报告制定指导方针,以提高患者的护理.
科学领域:
- 医疗信息学 医疗信息学
- 卫生传播健康传播
- 患者倡导 患者倡导
背景情况:
- 患者门户网站改善了对医疗记录的访问,但通常包含不适合非专业人士的复杂信息.
- 病理学报告对患者来说尤其具有挑战性,导致混乱,担忧和压力.
- 进行了系统审查,以确定以患者为中心的病理报告的建议.
研究的目的:
- 探索以患者为中心的病理报告方法的建议和指导方针.
- 评估以患者为中心的病理学报告 (PCPR) 对患者理解和回忆的影响.
主要方法:
- 在PubMed,Embase和Scopus进行了系统的文献搜索,寻找以患者为中心的病理学报告的研究.
- 包括的研究是英语原创研究,没有日期限制.
- 符合条件的标准适用于1,053个已识别的文章,其中5项研究符合全文审查的标准.
主要成果:
- 从定性研究和患者调查中得出的一个关键发现是,人们需要用简单的,非医学语言撰写病理学报告.
- 定量研究表明,患者更喜欢PCPRs.
- 与对照组相比,接受PCPRs的患者表现出更好的癌症阶段和癌症等级的知识和回忆.
结论:
- 病理学报告对于患者护理决策至关重要,但对于患者来说往往是不可理解的.
- 目前,还没有建立的框架或指导方针,以可访问的语言创建病理学报告.
- 在未来的干预中,开发和实施PCPR应优先考虑,以提高患者的理解和护理.
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