晚期非恶性肝病的支持性和息性护理需求:系统性审查
Ellen Haire1, Mala Mann2, Andrew Yeoman3
1Cardiff University, Cardiff, UK hairee@cardiff.ac.uk.
晚期肝硬化患者在支持性和息性护理 (SAPC) 中经历了重大未满足的需求. 需要进一步的研究,以建立最佳的护理模式和对这一群体的结果措施.
科学领域:
- 肝病学 肝病学是一种肝病学.
- 抚慰性护理是一种缓解性护理.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 晚期肝硬化导致严重的症状负担和高死亡率.
- 对于肝硬化患者来说,支持性和息性护理 (SAPC) 的需求越来越大.
- 目前为这些患者提供SAPC的模型缺乏共识.
研究的目的:
- 确定晚期肝硬化患者未得到满足的支持性和息性护理需求.
- 评估目前对此患者群体的SAPC的获取和交付模式.
- 旨在为评估晚期肝硬化中SAPC的核心结果集的开发提供信息.
主要方法:
- 通过使用与成人肝硬化和SAPC需求相关的关键词进行了全面的文献搜索.
- 评估了研究质量,并按主题分组了研究结果.
- 包括51篇全文文章,包括定性,定量,系统审查,混合方法和Delphi研究.
主要成果:
- 肝硬化患者面临着严重的身体和心理症状负担,有许多未满足的需求.
- 现有的数据没有为肝硬化患者确定最佳的SAPC服务模式.
- 专家息护理 (SPC) 转诊因人数少和启动迟到而影响有限.
结论:
- 迫切需要定义和满足晚期肝硬化患者的SAPC需求.
- 目前的证据不足以确定最佳的SAPC交付模型.
- 开发一个核心成果集对于SAPC干预措施的一致和有意义的评估至关重要.
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