交互式网站的代开发,以支持转移性乳腺癌的共同决策
Claire C Conley1, Sophia Cumbo2, Jacqueline Chavez Ochoa2
1Department of Oncology, Georgetown University, Washington, DC, USA. claire.conley@georgetown.edu.
概括
一个新的在线工具帮助转移性乳腺癌 (MBC) 患者为治疗决策做好准备. 该工具与患者和提供者一起代开发,改善了患者的知识和决策信心.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 患者教育 患者教育
背景情况:
- 转移性乳腺癌 (MBC) 治疗的进步增加了生存率,由于新疗法和副作用,改变了治疗决策.
- 对于MBC患者来说,共同决策对于导航复杂的治疗选择至关重要.
研究的目的:
- 开发和评估一个原型在线教育工具,旨在支持MBC患者的共享决策.
- 评估该工具的可接受性,可行性和对患者知识和决策自我有效性的影响.
主要方法:
- 一个五阶段的代开发过程,涉及质量访谈,故事板反,以及与MBC患者和瘤医疗提供者进行网站原型的用户测试.
- 最后阶段涉及6名新诊断的MBC患者使用原型一周,随后进行调查.
主要成果:
- 患者采访确定了关键信息需求和周期性决策过程.
- 代反改进了网站的内容和结构.
- 大多数5期参与者多次访问该工具,了解了新信息,并会推它.
- 参与者报告说,在使用原型后,他们对决策的准备和自我效能很高.
结论:
- 一个代的,多阶段的开发过程可以为复杂的癌症护理创建有效的患者教育工具.
- 开发的原型在提高MBC患者的准备能力和对共享决策的信心方面显示出前景.
- 这种工具有可能提高转移性乳腺癌管理中的护理质量和患者体验.
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