晚期父母癌症和青少年:育儿问题和挑战
Thepthara N Pholsena1, Frances Marcus Lewis2,3,4, Farya Phillips5
1UW Virology Research Clinic, Allergy and Infectious Disease Department, University of Washington, Seattle, WA, USA.
Palliative & supportive care
|May 13, 2024
概括
患有晚期癌症的父母努力解释和管理他们的青少年.
科学领域:
- 在瘤学瘤学.
- 儿童心理学 儿童心理学
- 家庭研究 家庭研究
背景情况:
- 晚期癌症每年影响超过60万名父母,影响超过15万名儿童.
- 父母的癌症诊断会给孩子带来严重的痛苦,但父母对青少年反应的看法还没有得到充分的研究.
- 很少有研究探讨父母如何解释和管理晚期癌症期间青少年的行为变化.
研究的目的:
- 探讨家长对青少年行为的担忧.
- 了解父母如何对晚期癌症中青少年的行为做出反应.
主要方法:
- 定性研究涉及6名青少年患有第四阶段癌症的父母的采访.
- 由训练有素的编码人员进行的诱导性内容分析确保了数据的严格性.
- 通过同行汇报,共识编码和审计轨迹来保持可靠性.
主要成果:
- 一个核心主题出现了:"在没有接管的情况下在那里".
- 父母努力解释青少年的行为,沟通癌症,保持乐观,并理解他们的孩子.
结论:
- 父母经历了相当大的痛苦,内,和不足,关于他们的青少年的福祉.
- 难以区分与癌症相关的痛苦与典型的青少年焦虑.
- 父母避免了与癌症有关的讨论,并没有寻求专业帮助.
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