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一般实践工作人员对共享用于研究的一般实践数据的看法:一个范围审查协议
Heidi Green1,2, Belinda Fabrianesi1, Lucy Carolan1
1Australian Centre for Health Engagement, Evidence and Values, School of Health and Society, University of Wollongong, Wollongong, NSW, Australia.
JBI evidence synthesis
|May 13, 2024
概括
本范围审查探讨了通用实践工作人员对共享患者数据进行研究的观点. 了解这些观点对于平衡研究收益与患者隐私和信任至关重要.
科学领域:
- 医疗信息学 医疗信息学
- 一般实践研究研究 一般实践研究
- 数据治理数据治理
背景情况:
- 通用实践数据对于大规模的健康研究,告知政策和个性化医学至关重要.
- 分享这些数据为改善医疗保健提供了巨大的潜力,但也带来了数据滥用和数据泄露等风险.
- 在考虑研究数据共享时,一般医生和患者之间的信任至关重要.
研究的目的:
- 将证据映射到一般实践工作人员关于研究共享一般实践数据的观点上的证据.
- 确定有关这个主题的可用证据类型.
- 了解全科医生和其他实践人员之间的观点范围.
主要方法:
- 按照乔安娜·布里格斯研究所 (JBI) 的方法进行范围审查.
- 一个全面的三步搜索策略,用于已公布和未公布的来源.
- 两个审查员独立选择证据,没有日期或语言限制.
主要成果:
- 审查将描述性地总结发现.
- 结果将以表格形式呈现.
- 将阐明有关工作人员观点的证据的范围和类型.
结论:
- 这次审查将全面概述一般实践人员关于研究数据共享的观点.
- 结果将为在初级保健研究中道德和有效的数据共享策略提供信息.
- 了解员工的观点对于建立信任和促进有价值的研究工作至关重要.
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