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改变美国对公共卫生数据使用的支持 通过流行病和政治动荡
Cason D Schmit1, Brian N Larson2, Thomas Tanabe1,2
1School of Public Health, Texas A&M University.
The Milbank quarterly
|May 13, 2024
概括
尽管发生了重大事件,但2020年公众对使用可识别健康数据的支持仍然很强. 然而,非洲裔美国人对公共卫生数据使用的舒适度呈现出独特的下降.
科学领域:
- 公共卫生 公共卫生
- 数据 隐私 数据 隐私 数据
- 社会学 社会学 社会学
背景情况:
- 2020年全球事件,包括大流行和反对种族主义的抗议,加剧了对数据隐私的担忧.
- 之前的研究表明,公众支持在公共卫生中使用可识别数据.
- 立法隐私努力还没有专门解决公共卫生数据的使用.
研究的目的:
- 评估2020年重大事件对美国公众舒适度的影响,并将可识别数据用于公共卫生和研究的次要用途.
- 了解与公共卫生数据利用相关的隐私偏好转变.
主要方法:
- 2020年2月和11月进行了两次在线调查,采用基于选择的联合分析.
- 参与者评估了数据使用场景,根据数据类型,用户和目的而有所不同.
- 人口偏好是使用层次贝叶斯回归模型模拟的,有1373个响应.
主要成果:
- 2020年2月至11月期间,公众对使用可识别数据用于公共卫生和研究的整体公共舒适度保持稳定.
- 最高的舒适度与人口健康和研究数据的使用有关,而以利为导向的活动是最低的.
- 与其他人口群体相比,非裔美国人独特地报告了与公共卫生和研究数据使用的舒适度下降.
结论:
- 两党支持在公共卫生和研究中使用可识别数据仍然存在,即使是在重大社会破坏的情况下.
- 非洲裔美国人的舒适度下降可能与对系统性种族主义和健康差异的提高意识有关.
- 这些发现支持将公共卫生和研究数据使用的具体法律规定纳入美国立法.
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