通过开发患者决策辅助工具来探索行为性角质的负担:一种混合方法研究
Ciara Drumm1,2, Aoife Moloney1, Louise Fleming1
1Charles Centre of Dermatology, St Vincent's University Hospital, Dublin, Ireland.
Clinical and experimental dermatology
|May 13, 2024
概括
开发一种患者决策辅助工具 (PDA) 对于动态角质瘤 (AKs) 帮助患者了解他们的病情和治疗选择. 这支持共享决策,并赋予患者管理皮肤癌风险的权力.
科学领域:
- 皮肤病学 皮肤病学
- 患者护理 患者护理
- 医疗信息学 医疗信息学
背景情况:
- 行动性角质瘤 (AKs) 是阳光照射区域的癌前皮肤病变,有可能发展为状细胞癌.
- 了解患者对 AKs 的体验对于改善患者与医疗服务提供者的关系和共同决策 (SDM) 至关重要.
研究的目的:
- 开发一个患者决策辅助器 (PDA) 用于多个AK的现场治疗,遵守国际患者决策辅助标准 (IPDAS).
- 描述多重AKS患者的负担和生活经验.
- 了解患者的决策需求和临床医生对多种AK的现场治疗的偏好.
主要方法:
- 根据最新的IPDAS指南,进行了一项混合方法研究.
- 该研究涉及患者体验和决策需求的特征.
- 他们还探讨了临床医生对现场治疗的偏好.
主要成果:
- 多个AKS在心理社会上显著影响患者.
- 患者报告说,当提供基于证据的信息以促进SDM时,他们感觉得到了更多的支持.
- 该研究强调了需要工具来帮助患者理解和参与.
结论:
- 多个AK的PDA可以增强患者和提供者之间的知情,共享决策.
- 实施PDA使患者能够积极参与他们的治疗策略.
- 这种方法支持个性化和有效的行动性角质的管理.
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