神经障碍后视力护理的感知:一种定性研究
Kerry Hanna1, Elizabeth Lomas2, Stephen Rimmer3
1School of Health Sciences, University of Liverpool, Liverpool, L69 3GB, UK. k.hanna2@liverpool.ac.uk.
BMC health services research
|May 14, 2024
概括
患有神经障碍的患者经历视力损失,往往缺乏足够的护理和支持. 这项研究强调了视力护理获得的重大不平等,需要改善临床支持和转诊途径,以获得更好的患者结果.
科学领域:
- 眼科和神经病学 眼科和神经病学
- 患者护理和康复 患者护理和康复
背景情况:
- 视力障碍是神经疾病的常见结果,影响日常生活,信心和心理健康.
- 现有的英国研究表明,中风后视力护理获得的差异;其他神经障碍后的经验不太了解.
- 缺乏标准化的国家指导方针有助于对神经病患视力丧失的不一致的护理计划.
研究的目的:
- 质量地探索患者对神经障碍后视力护理的看法.
- 确定在获得视力护理服务方面的不平等.
- 发现因神经疾病而导致视力受损的个人的潜在支持机制.
主要方法:
- 进行了深入采访,对经历神经障碍视力损伤的成年人进行了深入采访.
- 数据收集发生在2021年4月至11月期间.
- 以社会建设主义为指导的代主题分析被用于数据分析.
主要成果:
- 17名参与者分享了他们的经验,揭示了三个核心主题:理解视力障碍,对视力护理的责任以及影响护理质量的因素.
- 参与者报告说,缺乏适当的视力护理整合到他们的神经康复中.
- 个人经常在网上寻找信息,遇到不可靠和令人痛苦的内容.
结论:
- 在视力护理获取方面发现了重大不平等,许多患者承担了自我倡导和在线信息搜索的负担.
- 这项研究强调了视力丧失对患者和护理人员身份的深刻影响.
- 临床医生非常需要承认视力丧失的长期影响,提供增强的支持,信息和明确的转诊途径.
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