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技术研究研究中的PPIE:利用公众参与来完善概念和理解,并朝着一个多维的残疾概念迈进

William Lammons^1,2, Lucky Nobility¹, Sarah Markham^1,3

¹National Institute of Health and Care Research Applied Research Collaboration (NIHR ARC), North Thames, London, UK.

Health expectations : an international journal of public participation in health care and health policy

|May 15, 2024

概括

这项研究通过使用患者和公众参与将调查数据映射到概念模型中来完善残疾的概念. 这种方法赋予公众权力,丰富了对残疾的理解.

科学领域:

关于残疾人的研究.
社会科学社会科学社会科学
公共卫生公共卫生

背景情况:

障碍常常被过度简化,需要更细致的理解.
现有的调查数据可以用来扩大和深化残疾概念.

研究的目的:

提炼残疾的多维性质.
开发一个协作模型,将生活经验纳入残疾研究中.

主要方法:

结合患者和公众参与和参与 (PPIE) 与重点小组和概念映射.
六名具有残疾生活经验的公众成员合作将调查问题映射到概念模型中.
使用反射性主题分析来确定定性主题和子主题.

主要成果:

确定了三个定性主题:理解残疾概念,需求和调整的一致性以及现实世界的应用.
出现了八个子主题,包括对生物心理社会模型的偏好和改善活动的反.
调查结果强调了与人力资源和DEI专业人员分享结果的重要性.

结论:

协作方法赋予了公众参与者的权力.
这种模式为研究人员提供了一个框架,让研究控制权交给公众.
通过综合生活经验和调查数据,增强对残疾的理解.

关键词:

身体残疾就是残疾.焦点小组是一个重点小组.绘制地图,绘制地图.公众参与,公众参与.调查调查调查调查调查

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