DS-PACK:用于端到端支持受控访问的人类数据共享的工具组合
Pinar Alper1,2, Vilém Dĕd3,4, Sascha Herzinger3,4
1Luxembourg National Data Service, PNED GIE, Esch-sur-Alzette, L-4362, Luxembourg. pinar.alper@elixir-luxembourg.org.
Scientific data
|May 15, 2024
概括
欧盟通用数据保护条例 (GDPR) 需要联合数据共享. DS-PACK是一个开源工具集,可以半自动化对敏感人体数据的受控访问流程,帮助研究机构.
科学领域:
- 基因组学就是基因组学.
- 数据科学数据科学数据科学
- 生物信息学是一种生物信息学.
背景情况:
- 欧盟通用数据保护条例 (GDPR) 要求转向共享敏感人类数据的联邦模式.
- 集中的基因组现象档案正在向联合系统过渡,以遵守数据保护法规.
- 研究机构经常在实施受控数据访问流程所需的资源方面扎.
研究的目的:
- 推出DS-PACK,一个可重复使用的开源中间件解决方案.
- 从提交到访问,为敏感的人类数据半自动化端到端的受控访问流程.
- 在数据共享基础设施中嵌入数据保护原则.
主要方法:
- 开发DS-PACK作为中间件工具集.
- 集中访问控制管理与分布式执法.
- 与基于云的数据访问应用程序集成.
- 在ELIXIR卢森堡数据托管平台的生产环境中实现.
主要成果:
- DS-PACK为控制数据访问过程提供了一种半自动化解决方案.
- 工具组合确保数据保护原则在整个整合.
- 它集中了访问控制管理,同时分散了执法.
- DS-PACK支持通过基于云的应用程序访问数据.
结论:
- DS-PACK为联合数据共享促进了遵守GDPR.
- 该工具集通过简化受控访问的实施来赋予研究机构权力.
- 它的生产使用证明了安全,联合的数据共享的可行运营模式.
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