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照顾在家治疗婴儿的护理人员在家中通过持续的侵入性或非侵入性通风治疗的经验
Jon Maniaci1, Matthew D Kearney2, Sara B DeMauro3
1Division of Pulmonary and Sleep Medicine, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Pediatric pulmonology
|May 16, 2024
概括
在家用机械通风系统照顾孩子,无论是侵入性还是非侵入性,都会对家庭生活产生重大影响. 尽管面临着困扰和干扰等挑战,但父母发现家庭护理具有价值,培训和支持可以缓解过渡.
科学领域:
- 儿科重症监护 儿科重症监护 儿科重症监护
- 护理人员-儿童健康
- 家庭医疗保健 在家医疗保健
背景情况:
- 家庭儿童机械通风为照顾者带来了独特的挑战.
- 对于照顾者在家中对儿童进行非侵入性通风管理的经验,人们的理解有限.
- 照顾者的生活质量可能会受到照顾需要持续侵入性通风的儿童的要求的影响.
研究的目的:
- 评估和比较照顾儿童的护理人员在侵入性与非侵入性家用机械通风的经验.
- 评估与孩子的通风模式相关的父母生活质量.
- 探索护理人员的决策,家庭过渡和与健康有关的生活质量.
主要方法:
- 进行了半结构化的定性访谈,对在持续呼吸器支持下出院的婴儿的照顾者进行了采访.
- 该研究包括16名护理人员:八名入侵通风儿童和八名非入侵通风儿童.
- 采访的重点是决策过程,转向家庭护理以及与健康有关的生活质量.
主要成果:
- 侵入性和非侵入性通风组的护理人员报告了严重的失眠,情绪困扰,工作中断和家庭困难.
- 寻求家庭通风的主要动机是希望在家里家庭团聚.
- 尽管面临挑战,但家长对家庭通风表示高度满意,并认为他们的孩子的生活变得更加丰富.
结论:
- 需要持续机械通风的儿童家庭面临隔离,生活方式的破坏和不良健康结果,无论通风类型.
- 有效的医院培训和强大的支持系统对于促进向家庭机械通风过渡至关重要.
- 护理人员的经验强调了家庭通风对家庭动态和幸福感的深刻影响.
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